Stigmatization of people living with HIV/AIDS and the problem of disclosure: Analysis of the online forum discussions

Authors

  • Victoria I. Dudina St. Petersburg State University, 7–9, Universitetskaya nab., St. Petersburg, 199034, Russian Federation https://orcid.org/0000-0003-2099-2345
  • Kristina N. Artamonova St. Petersburg State University, 7–9, Universitetskaya nab., St. Petersburg, 199034, Russian Federation

DOI:

https://doi.org/10.21638/11701/spbu12.2018.106

Abstract

Stigmatization of people living with HIV is the main obstacle to status disclosure. The main difficulties in the study of stigmatization are the difficult access to stigmatized individuals and the effect of the interviewer. Online forums are an important source of data for the research of stigmatization of people living with HIV. The aim of the research was to find out what kind of information regarding the stigmatization of people living with HIV/AIDS can be learned by examining the posts of online forum users. The main focus of the study was to examine how users perceive stigmatization in the context of status disclosure. Data collection was conducted on the “Forum for people living with HIV/AIDS”. Fourteen sections containing relevant discussions were selected for analysis. Data processing and analysis was carried out with NVivo 9. It is concluded that data collection through Internet resources permits obtaining information about vulnerable groups when the purpose of the study is not to build explanatory models but to identify a spectrum of opinions, perceptions and behaviors.

Keywords:

stigma, stigmatization, HIV/AIDS, people living with HIV, status disclosure, online forum, data collection methods

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References

Литература

Chambers L., Rueda S., Baker D., Wilson M., Deutsch R., Raeifar E., Rourke S. and The Stigma Review Team. Stigma, HIV and health: a qualitative synthesis // BMC Public Health. 2015. Vol. 15 (1). P. 1–17.

Herek G. M. AIDS and stigma // American Behavioral Scientist. 1999. Vol. 42 (7). Р. 1106–1116.

Lee R. S., Kochman A., Sikkema K. J. Internalized stigma among people living with HIV-AIDS // AIDS and Behavior. 2002. Vol. 6 (4). P. 309–319.

Parker R., Aggleton P. HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action // Social Science & Medicine. 2003. N 57. P. 13–24.

Mahajan A., Sayles J., Patel V., et al. Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward // AIDS. 2008. N 22. P. 67–79.

Earnshaw V., Bogart L., Dovidio J., Williams D. Stigma and racial/ethnic HIV disparities: moving toward resilience // American Psychologist. 2013. N 68. P. 225–236.

Earnshaw V., Smith L., Chaudoir S., Amico K., Copenhaver M. HIV stigma mechanisms and well-being among PLWH: a test of the HIV stigma framework // AIDS Behavior. 2013. N 17. P. 1785–1795.

Fuster-Ruizdeapodaca M., Molero F., Holgado F., Mayordomo S. Enacted and internalized stigma and quality of life among people with HIV: the role of group identity // Quality of Life Research. 2014. Vol. 23 (7). P. 1967–1975.

Звоновский В. Б. ВИЧ и стигма // Журнал исследований социальной политики. 2008. Т. 6, № 4. C. 506–521.

Чернявская О. А., Иоанниди Е. А. Некоторые аспекты проблемы стигматизации и дискриминации людей, живущих с ВИЧ/СПИДом // Социология медицины. 2014. № 2. C. 46–48.

Крюкова Т. Л., Шаргородская О. В. Одиночество ВИЧ-инфицированных людей как фактор, препятствующий совладанию с болезнью // Ярославский педагогический вестник. 2015. № 3. С. 205–210.

Бородкина О. И. ВИЧ/СПИД как риск современного общества // Вестн. C.-Петерб. ун-та. Сер. 12. Психология. Социология. Педагогика. 2008. Вып. 2. С. 216–221.

Дудина В. И., Юдина Д. И. «Принимать или не принимать»: страхи ВИЧ-инфицированных по поводу антиретровирусной терапии // Вестн. C.-Петерб. ун-та. Сер. 12. Социология. 2013. Вып. 3. С. 139–144.

Шаболтас А. В. Психологические основы превенции ВИЧ-инфекции. СПб.: Скифия-Принт, 2015. 694 c.

Chen L., Shi J. Social support exchanges in a social media community for people living with HIV/AIDS in China // AIDS Care. 2015. Vol. 27. P. 693–696.

Bar-Lev S. “We Are Here to Give You Emotional Support”: Performing Emotions in an Online HIV/AIDS Support Group // Qualitative Health Research. 2008. Vol. 18, N 4. P. 509–521.

Coursaris C. K., Liu M. An analysis of social support exchanges in online HIV/AIDS self-help groups // Computers in Human Behavior. 2009. Vol. 25. P. 911–918.

Davison K., Pennebaker J., Dickerson S. Who talks? The social psychology of illness support groups // American Psychologist. 2000. Vol. 55 (2). P. 205–217.

Рыков Ю. Г., Кольцова Е. Ю., Мейлахс П. А. Структура и функции онлайн-сообществ: сетевая картография ВИЧ-релевантных групп в социальной сети «ВКонтакте» // Социологические исследования. 2016. № 8. С. 30–42.


References

Chambers L., Rueda S., Baker D., Wilson M., Deutsch R., Raeifar E., Rourke S. and The Stigma Review Team. Stigma, HIV and health: a qualitative synthesis. BMC Public Health, 2015, vol. 15 (1), pp. 1–17.

Herek G. M. AIDS and stigma. American Behavioral Scientist, 1999, vol. 42 (7), pp. 1106–1116.

Lee R. S., Kochman A., Sikkema K. J. Internalized stigma among people living with HIV-AIDS. AIDS and Behavior, 2002, vol. 6 (4), pp. 309–319.

Parker R., Aggleton P. HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action. Social Science & Medicine, 2003, no. 57, pp. 13–24.

Mahajan A., Sayles J., Patel V., et al. Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward. AIDS, 2008, no. 22, pp. 67–79.

Earnshaw V., Bogart L., Dovidio J., Williams D. Stigma and racial/ethnic HIV disparities: moving toward resilience. American Psychologist, 2013, no. 68, pp. 225–236.

Earnshaw V., Smith L., Chaudoir S., Amico K., Copenhaver M. HIV stigma mechanisms and wellbeing among PLWH: a test of the HIV stigma framework. AIDS Behavior, 2013, no. 17, pp. 1785–1795.

Fuster-Ruizdeapodaca M., Molero F., Holgado F., Mayordomo S. Enacted and internalized stigma and quality of life among people with HIV: the role of group identity. Quality of Life Research, 2014, vol. 23 (7), pp. 1967–1975.

Zvonovskii V. B. VICh i stigma [HIV and stigma]. Zhurnal issledovanii sotsial’noi politiki, 2008, vol. 6, no. 4, pp. 506–521. (In Russian)

Cherniavskaia O. A., Ioannidi E. A. Nekotorye aspekty problemy stigmatizatsii i diskriminatsii liudei, zhivushchikh s VICh/SPIDom [Some aspects of the problem of stigmatization and discrimination of people living with HIV/AIDS]. Sotsiologiia meditsiny, 2014, no. 2, pp. 46–48. (In Russian)

Kriukova T. L., Shargorodskaia O. V. Odinochestvo VICh-infitsirovannykh liudei kak faktor, prepiatstvuiushchii sovladaniiu s bolezn’iu [Loneliness of HIV-infected people as a factor preventing coping with the disease]. Iaroslavskii pedagogicheskii vestnik, 2015, no. 3, pp. 205–210. (In Russian)

Borodkina O. I. VICh/SPID kak risk sovremennogo obshchestva [HIV/AIDS as a risk of modern society]. Vestnik of Saint-Petersburg University. Series 12, 2008, no. 2, pp. 216–221. (In Russian)

Dudina V. I., Iudina D. I. «Prinimat’ ili ne prinimat’»: strakhi VICh-infitsirovannykh po povodu antiretrovirusnoi terapii [“To accept or not to accept”: fears of HIV-infected people about antiretroviral therapy]. Vestnik of Saint-Petersburg University. Series 12, 2013, no. 3, pp. 139–144. (In Russian)

Shaboltas A. V. Psikhologicheskie osnovy preventsii VICh-infektsii [Psychological basis of HIV infection prevention]. St. Petersburg, Skifiya-Print, 2015. 694 p. (In Russian)

Chen L., Shi J. Social support exchanges in a social media community for people living with HIV/AIDS in China. AIDS Care, 2015, vol. 27, pp. 693–696.

Bar-Lev S. “We Are Here to Give You Emotional Support”: Performing Emotions in an Online HIV/AIDS Support Group. Qualitative Health Research, 2008, vol. 18, no. 4, pp. 509–521.

Coursaris C. K., Liu M. An analysis of social support exchanges in online HIV/AIDS self-help groups. Computers in Human Behavior, 2009, vol. 25, pp. 911–918.

Davison K. P., Pennebaker J. W., Dickerson S. S. Who talks? The social psychology of illness support groups. American Psychologist, 2000, vol. 55 (2), pp. 205–217.

Rykov Iu. G., Kol’tsova E. Iu., Meilakhs P. A. Struktura i funktsii onlain-soobshchestv: setevaia kartografiia VICh-relevantnykh grupp v sotsial’noi seti «VKontakte» [Structure and functions of online communities: network mapping of HIV-relevant groups in the social network “VKontakte”]. Sotsiologicheskie issledovaniia, 2016, no. 8, pp. 30–42. (In Russian)

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Published

2018-04-06

How to Cite

Dudina , V. I., & Artamonova , K. N. (2018). Stigmatization of people living with HIV/AIDS and the problem of disclosure: Analysis of the online forum discussions. Vestnik of Saint Petersburg University. Sociology, 11(1), 66–78. https://doi.org/10.21638/11701/spbu12.2018.106

Issue

Vol. 11 No. 1 (2018): VESTNIK OF SAINT PETERSBURG UNIVERSITY. SOCIOLOGY

Section

Medicalization of modern society and health problems: sociological perspective

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Articles of "Vestnik of Saint Petersburg University. Sociology" are open access distributed under the terms of the License Agreement with Saint Petersburg State University, which permits to the authors unrestricted distribution and self-archiving free of charge.